Latest News

Local News Station Helps Spread the Word About Porphyria

Friday, November 15, 2019

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EPP Survey

Friday, November 15, 2019

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Mitsubishi Phase 2 Clinical Trial Meets Endpoint for Treatment of Erythropoietic Protoporphyria (EPP)

Tuesday, November 12, 2019

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Upcoming Events

December 7, 2019 - December 9, 2019

ASH Conference

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December 8, 2019

Patient Education and Support Meeting

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March 17, 2020 - March 21, 2020

ACMG Conference

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