The APF will be participating in a FDA Rare Disease Listening Session
This year's Find Your Shadow recipients
Seeking patients who receive prophylactic heme treatment and the treatment has been working for them.
Did you know that the APF will send a physician education packet to any of your doctors?
The FDA has accepted the New Drug Application for givosiran and granted it Priority Review.
What do all the porphyrias have in common? PAIN.
Share your stories at upcoming events where APF will be exhibiting.
Thank you to our team at Wake Forest Baptist Health!
Do you have PCT? Are you interested in participating in research? Do you have Hepatitis C?
Check out APF's official YouTube channel!