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FDA Rare Disease Listening Session

FDA Rare Disease Listening Session

August 16, 2019

The APF will be participating in a FDA Rare Disease Listening Session

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Find Your Shadow 2019

Find Your Shadow 2019

August 16, 2019

This year's Find Your Shadow recipients

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Panhematin Prophylactic study

Panhematin Prophylactic study

August 16, 2019

Seeking patients who receive prophylactic heme treatment and the treatment has been working for them.

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Help Us Educate Your Physicians!

Help Us Educate Your Physicians!

August 16, 2019

Did you know that the APF will send a physician education packet to any of your doctors?

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FDA Accepts New Drug Application and Grants Priority Review for Givosiran

FDA Accepts New Drug Application and Grants Priority Review for Givosiran

August 8, 2019

The FDA has accepted the New Drug Application for givosiran and granted it Priority Review.

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"Let's Talk About Pain"

August 8, 2019

What do all the porphyrias have in common? PAIN.

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Volunteers Needed!

Volunteers Needed!

August 8, 2019

Share your stories at upcoming events where APF will be exhibiting.

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Patient Education and Support Meeting- Winston Salem, NC

Patient Education and Support Meeting- Winston Salem, NC

August 8, 2019

Thank you to our team at Wake Forest Baptist Health!

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Harvoni Study - PCT

Harvoni Study - PCT

August 2, 2019

Do you have PCT? Are you interested in participating in research? Do you have Hepatitis C?

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APF YouTube Channel

APF YouTube Channel

August 2, 2019

Check out APF's official YouTube channel!

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