Test your porphyria knowledge with this crossword puzzle!
What do all the porphyrias have in common? PAIN.
Art is a powerful and therapeutic way to express the challenges and triumphs that come with living with a rare disease.
Clinuvel Pharmaceuticals emphasized the difficulty that patients with EPP experience
We aim to protect the health and well-being of all patients and members.
Terri Witter was featured on a local news segment
This critical OpEd was published today about access to Panhematin.
Last night, July 10th, the APF hosted a Patient Education and Support Meeting in New York City at Mt. Sinai
Have you had problems or difficulties accessing Panhematin in a hospital setting
The APF will be closed in observation of Independence Day on July 4th, 2019. We will resume normal office hours on July 5th, 2019 at 9am.