Over the years, the experts of the Porphyrias Consortium have developed an extensive list of publications.
Camp Sundown has provided children and families with the opportunity to take part in a unique camp experience.
Meetings scheduled for New York City (July 10) and Winston-Salem, NC (August 6).
We encourage you to contact your LEGISLATORS and MEDIA! Share the story of EPP and Scenesse.
Expert physicians on our Scientific Advisory Board can answer your porphyria questions.
The American Porphyria Foundation wants to invite you to share your story with the porphyria community!
Did you know that you can support to the APF by simply shopping on Amazon?
Alnylam Pharmaceuticals has completed the rolling submission of the New Drug Application for Givosiran to the Food and Drug Administration (FDA).