All News

Help Us Educate Your Physicians!

Help Us Educate Your Physicians!

August 16, 2019

Did you know that the APF will send a physician education packet to any of your doctors?

Read More


FDA Accepts New Drug Application and Grants Priority Review for Givosiran

FDA Accepts New Drug Application and Grants Priority Review for Givosiran

August 8, 2019

The FDA has accepted the New Drug Application for givosiran and granted it Priority Review.

Read More


"Let's Talk About Pain"

August 8, 2019

What do all the porphyrias have in common? PAIN.

Read More


Volunteers Needed!

Volunteers Needed!

August 8, 2019

Share your stories at upcoming events where APF will be exhibiting.

Read More


Patient Education and Support Meeting- Winston Salem, NC

Patient Education and Support Meeting- Winston Salem, NC

August 8, 2019

Thank you to our team at Wake Forest Baptist Health!

Read More


Harvoni Study - PCT

Harvoni Study - PCT

August 2, 2019

Do you have PCT? Are you interested in participating in research? Do you have Hepatitis C?

Read More


APF YouTube Channel

APF YouTube Channel

August 2, 2019

Check out APF's official YouTube channel!

Read More


Porphyria Crossword

Porphyria Crossword

August 2, 2019

Test your porphyria knowledge with this crossword puzzle!

Read More


"Let's Talk About Pain"

July 26, 2019

What do all the porphyrias have in common? PAIN.

Read More


Rare Artist Contest

Rare Artist Contest

July 26, 2019

Art is a powerful and therapeutic way to express the challenges and triumphs that come with living with a rare disease.

Read More


4 of 10 total pages