Rare Disease Week on Capitol Hill Travel Stipend Application

Submissions are being accepted for travel stipends to attend the 2020 Rare Disease Week on Capitol Hill! We would love to have the Porphyria community represented this year in Washington, DC. This event brings together hundreds of patients, patient advocates, industry leaders and more. Please submit your scholarship application today, as the portal will close on December 2, 2019.

Please note: Travel stipends are available up to $800.00. Registration for patients and patient advocates is free, however, you must pay for your hotel and travel costs out of pocket. The APF/EveryLife Foundation is not responsible for making these arrangements. Stipend recipients are required to attend the Legislative Conference on February 26th and the Hill Day on February 27th but may attend the other events as well. Limit one travel stipend per family can be awarded.

Click to View Stipend Application

Click to View Rare Disease Week on Capitol Hill Information