Register NOW for Rare Disease Week on Capitol Hill 2020!

You are invited to join more than 800 advocates for Rare Disease Week on Capitol Hill 2020 from February 25th to 28th. Registration is now OPEN for all the events during this exciting and powerful week in Washington, DC.

Rare Disease Week on Capitol Hill brings rare disease community members from across the country together to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators.

Attendance at the Legislative Conference on February 26th is required in order to attend the Hill Day on February 27th.

CONGRATULATIONS TO SHARON DILL who was awarded a grant to attend rare disease week on Capitol Hill 2020! We are excited for you to join this legislative effort in Washington, DC.

Please click here to view the schedule of events and to register for Rare Disease Week on Capitol Hill