Latest News

Diagnostic Delay

Wednesday, July 17, 2019

Clinuvel Pharmaceuticals emphasized the difficulty that patients with EPP experience

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Medical Moment: Your medical information, your laboratory results, and your privacy!

Wednesday, July 17, 2019

We aim to protect the health and well-being of all patients and members.

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APF Member Featured on Local News

Wednesday, July 17, 2019

Terri Witter was featured on a local news segment

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Upcoming Events

August 6, 2019

Patient Education and Support Meeting - Winston-Salem

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September 8, 2019 - September 11, 2019

ICPP Conference and Patient Day

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November 9, 2019 - November 11, 2019

AASLD Conference

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