Latest News

FDA approval of SCENESSE® (afamelanotide 16mg)

Friday, October 11, 2019

Scenesse was approved by the FDA on October 8 as a treatment to increase pain-free time in the light for patients with EPP.

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The FDA APPROVES SCENESSE!

Tuesday, October 8, 2019

The FDA has granted APPROVAL for Afamelanotide (Scenesse) for the treatment of Erythropoietic Protoporphyria!

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Porphyria Post

Tuesday, October 8, 2019

Please consider a donation to the American Porphyria Foundation.

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Upcoming Events

November 9, 2019 - November 11, 2019

AASLD Conference

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November 10, 2019

Patient Education and Support Meeting

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December 7, 2019 - December 9, 2019

ASH Conference

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