All News

Patient Education and Support Meetings

Patient Education and Support Meetings

June 27, 2019

Meetings scheduled for New York City (July 10) and Winston-Salem, NC (August 6).

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Call To Action

Call To Action

June 20, 2019

We encourage you to contact your LEGISLATORS and MEDIA! Share the story of EPP and Scenesse.

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Ask Us Anything

Ask Us Anything

June 20, 2019

Expert physicians on our Scientific Advisory Board can answer your porphyria questions.

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Member Stories

Member Stories

June 14, 2019

The American Porphyria Foundation wants to invite you to share your story with the porphyria community!

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Smile, Shop, and Support

Smile, Shop, and Support

June 14, 2019

Did you know that you can support to the APF by simply shopping on Amazon?

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Alnylam News

Alnylam News

June 6, 2019

Alnylam Pharmaceuticals has completed the rolling submission of the New Drug Application for Givosiran to the Food and Drug Administration (FDA).

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Scenesse Update

Scenesse Update

June 6, 2019

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Member Stories

Member Stories

May 31, 2019

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